Then 3.5 years ago, I got Transverse Myelitis. If you want to read about the full catastrophe, and my reactions to hospital systems and staff, you can at Taking Charge: a journey of recovery
But that is not why I am writing at this point. I have made a moderate recovery, having been initially totally paralysed from T7 down. I walk (occasionally uncertainly), I continue to work (despite the daily chest pain, and the ongoing uncertainties of bowel and bladder function). I can manage each day, whatever I am doing (although I get immensely fatigued by work, and by driving the car). One thing that bugs me, and that I continue to have to work on, is my walking. I used to be able to do a fairly regular 5-800 metres (and then collapse). I have done the occasional 1.2Km (and then collapsed in a sweaty heap). Now I can only manage about 2-300 metres as a LONG walk before I get fatigued and begin to get a bit of foot drop in my right leg.
What I wanted to talk about is the feeling in my legs - or rather the odd feelings in my legs - like I am wearing thick rather scratchy woollen socks up over the knees. My legs appear not to have very good circulation, and most of the time they feel cold, even tucked up under the duna in bed. We are all different, and I have heard all sorts of stories. I have lost quite a lot of sensation in both legs - in patches. I can feel heat and cold, and sharp and dull. My physiotherapist says I have quite poor proprioception - the sense of where my feet are in space, or what they are doing at any moment. I now have a set of specific exercises to improve this. A massage has certain areas where it is really quite painful - in the lower calves, over the join between metatarsals and toes, and round the end of some toes. I enjoy massage despite that, and have a belief that 'pain is good' (well, mostly).